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What Are the Changes to Information Sharing?

 

1. care.data

2. Summary Care Record


1. Care Data

Under the Health and Social Care Act 2012, NHS England has commissioned a programme of work to be carried out by the HSCIC (Health and Social Care Information Centre) on behalf of the NHS, public health and social care services, this will be known as care.data. The HSCIC is England’s central authoritative source of health and social care information. The idea is to gather evidence from across all the varieties of the health service to improve quality of patient care.

 

Care.data will make increased use of information from medical records with the intention of improving healthcare locally and nationally for example by ensuring that timely and accurate data are made available to NHS commissioners and providers so that they can better design integrated services for patients. It will also help in finding more effective ways of preventing, treating and managing illnesses.

 

The British Medical Association supports the use of patient data for secondary purposes, including commissioning, and recognises the importance of greater transparency and more intelligent use of data to improve the quality of care delivered to patients.

 

HSCIC will be able to link patients GP data to their hospital data and to any data from social care services. No free text will be extracted, only coded information about referrals, NHS prescriptions and other clinical data. This information, patient confidential data (PCD) is collected without actively seeking patient consent first. This means everyone is opt in to have their data collected and used by the HSCIC and patients have to actively opt out of the service.

 

NHS England has made a commitment that PCD will not be shared unless there is a legal basis or an overriding public interest in disclosure.

 

What Does This Mean To Me As A Patient?

The data set will be extracted from our system in a form that can identify you and will include personal confidential data such as


  • NHS number
  • date of birth
  • postcode
  • gender
  • Referrals
  • NHS prescriptions 
  • Family history 
  • Vaccination history 
  • Blood test results 
  • Smoking status 
  • alcohol habits  
  • your medical history

Free Text will not be extracted.

 

The uploaded data is also likely to be made available to organisations outside of the NHS, such as universities and commercial organisations. Once the data has been extracted, the GP practice, hospital etc is no longer the data controller for that information and cannot control or protect in anyway how that information is used, shared or who has access to it.

 

Is There Anything I Can Do?

GP practices cannot object to this information leaving the practice but patients can instruct us to prohibit the transfer of their data ie you have the right to opt out. 

 

This is not the NHS Database (The Summary Care Record). If you have opted out of this you will still need to opt of out of Care data uploads.

 

If you do not wish any PCD leaving the practice for use in this way please complete this opt-out form and return it to us at the surgery and we will update your records with the appropiate readcodes.

For further information on care.data please click on the links below:

 

NHS website:  http://www.nhs.uk/caredata

pateint leaflet  Care.Data leaflet

Frequently Asked Questions: Patient FAQ's

 

 

The HSCIC has published a you tube video click the link below:

http://youtu.be/3Pkb65rwZVI

 

*The electronic extraction of this data has been postponed until the Autumn.*

 


2. Summary Care Record

A Summary Care Record is an electronic patient record - a summary of patient data held on a central database (the national spine). The purpose of the database is to make patient data readily available in England anywhere in the NHS where the patient seeks treatment for example at an Out Of Hours service, A&E departments or if they are in another part of England and need to see a GP.

 

Demographic details are held on the spine and up until now the surgery has not uploaded any clinical data.  From April 2014 we have a contractual obligation to do so. The information uploaded will be that required in an emergency i.e. Medication, allergies and drug reactions.  So it is used to provide patients with direct care and treatment.


If you are happy to have a Summary Care Record then you do not have to do anything. If you do not wish to have a Summary Care Record please complete the following OPT OUT form.

 

*This data will be electronically extracted on Monday 3rd March 2014.*

 

Download OPT OUT form

 

For further information on Summary Care Record please click on the links below:

NHS website http://www.nhscarerecords.nhs.uk/

patient leaflet SCR

 


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