Your Data Matters to the NHS
Information about your health and care helps us to improve your individual care, speed up diagnosis, plan your local services and research new treatments. The NHS is committed to keeping patient information safe and always being clear about how it is used.
How Your Data is Used
Information about your individual care such as treatment and diagnoses is collected about you whenever you use health and care services. It is also used to help us and other organisations for research and planning such as research into new treatments, deciding where to put GP clinics and planning for the number of doctors and nurses in your local hospital. It is only used in this way when there is a clear legal basis to use the information to help improve health and care for you, your family and future generations. Wherever possible we try to use data that does not identify you, but sometimes it is necessary to use your confidential patient information.
You Have a Choice
You do not need to do anything if you are happy about how your information is used. If you do not want your confidential patient information to be used for research and planning, you can choose to opt out securely online or through a telephone service. You can change your mind about your choice at any time.
Will Choosing this Opt-out Affect Your Care and Treatment
No, choosing to opt out will not affect how information is used to support your care and treatment. You will still be invited for screening services, such as screenings for bowel cancer.
What do You Need to do
If you are happy for your confidential patient information to be used for research and planning, you do not need to do anything. To find out more about the benefits of data sharing, how data is protected, or to make/change your opt-out choice visit www.nhs.uk/your-nhs-data-matters. For a copy of patient leaflet check ‘Our Documents’ page.
We are Joining up Your Health and Care Records to Improve the Local Services you Receive
What Does this Mean for You
Being able to see your health and social care records at any time and in different places means health and care professionals can make quicker and safer decisions about your care. We all use a wide range of health and care services in our lives, whether it’s a visit to see your GP, a hospital appointment or receiving a visit from a social worker. We don’t receive our all of our care in one place or from a single organisation. We may see our GP locally, but go to a hospital in another borough. If we need emergency care, we may be taken to the most appropriate accident and emergency unit, which may be some distance from where we live.
When this happens, each organisation keeps a record of the care we receive; in the past, these records were on paper, but now this is usually an electronic record held separately by each organisation. We are one of a number of GP practices, who are part of a scheme to join up the electronic health and care records of all adults and children in north central London.
Health and care professionals have shared information on paper for many years – we now plan to do this using digital technology. Joining up records in five boroughs (Barnet, Camden, Enfield, Haringey and Islington) is a building block for future plans to join up records across the whole of London but until this happens, your joined-up record will cover these five boroughs.
Most of your current health and care information, such as medication and allergy history, the summary of your care from past hospital stays and future appointments will be included. This will be your recent history as health and care services have not always recorded this information on electronic systems. Sensitive information such as sexual health, HIV status, fertility treatment records, domestic violence and criminal records will not be included.
Over time, it will also include information from other organisations that provide NHS and local authority social care services. (We do not currently plan to include children’s social care records). If you don’t want to be part of the joined-up record, you can opt out now, or at any point in the future. More information and a detailed privacy notice can be found at: www.northlondonpartners.org.uk/joined-up-care-record.